Tuesday, May 10, 2016

Day 2 - The Program

It was a bit tougher morning today.  I probably stressed more than.  I needed too.  I tried really hard not to show it to Coco though.   We ended up only being 10 minutes late.
      It was changeover day too.  Demi came to take over for the rest of the week.  We met at the hospital.  We also had a joint meeting with the doctors.  First it was just the two of us, Demi and me.  We talked to two of Coco's doctors, but one was a fill in.  I led off with my concern about the dominance of electronics in Coco's life.  The fill in actually offered some good approaches to dealing with it.  When Coco was brought in, the meeting started well.  He gave his thoughts on the one thing that made his parents optimistic and the one thing that concerned his parents the most.  He nailed the positive.  He was not entirely wrong about our leading area of concern but when he found out what it actually was, the meeting got tense.  I could see him getting upset.  I worried that we might lose him. He started shutting down.  But he got through it.  We got through it.
     We then headed to my cousin's beach house in Narragansett.  She was offering to let us stay there. It was such a generous offer. So much so that while we had concerns about it's proximity to the hospital, we almost felt like we couldn't turn it down.  She made it so easy on us though.  She showed us around.  But she also understood that it might not work for us.  Family can really be terrific like that.  Coco loved the place.  It was so much brighter and cheerier than the hotel.  The hotel was not bad, but it is just not homey.  Demi is going to check out of the hotel tomorrow and give the beach house a shot.  Cross your fingers.

No comments: